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Nuts and Bolts of Conducting Patient-Centered Psychosocial Oncology Research

Angela Usher, Felicia Johnson, and Lisa Capparella
Recorded on January 17, 2019

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About this Live Interactive Webinar 

For decades, oncology social workers have been involved in gathering information from patients about how cancer affects their lives and what services might help alleviate suffering of patients and their loved ones. How can we take what we learn from our patients, and create a collaborative research project? Seldom have researchers, social work clinicians and patients had the opportunity to develop research together. Patient-centered research is a process of engaging patients as essential stakeholders in the research process. This process holds great potential for psychosocial oncology research and improvements in patient and family care. The purpose of this webinar is to provide oncology social workers and patient advocates with an overview of patient-centered research and the basic components of psychosocial oncology research.

Learning Objectives
At the end of the presentation, the participant will be able to:
  1. Demonstrate a greater understanding of psychosocial research that engages patients as research partners.
  2. Identify basic components of a research plan.
  3. Describe the role of research in improving patient care, and advocating for policy changes.  

    Angela Usher is an oncology social worker at UC Davis Comprehensive Cancer Center, where she has worked for the UC Davis Health System since 2000. Angela is also completing her PhD in Nursing Research and Healthcare Leadership at the UC Davis School of Nursing and will graduate this June. Angela is passionate about health research, especially patient-centered research, and using research findings to inform policy and improve services in psychosocial oncology.



Felicia Johnson is a cancer survivor and patient research collaborator. As a patient advocate, Felicia has taken the opportunity to participate on the research institute planning committee for the Patient Centered Research Collaboration (PCRC). Felicia enjoys brain storming and discussing topics for research projects and presentations alongside oncology social workers, other patient advocates and the PCRC.



    Lisa Capparella is an oncology social worker with over 12 years of experience in the medical field. She is the manager of The Cancer Support and Welcome Center at the NCI-designated Thomas Jefferson University Hospital. Lisa creates patient support and education programs, manages a medical legal partnership, a massage and reiki clinic and utilizes patient advocates for important input and collaboration on the center and programming.

Continuing Education Credits
Level - Intermediate
Participants will earn 1.5 CE credits upon successful completion of a quiz and a post-webinar evaluation. 

Course Designation
This course has been approved for 1.5 clinical continuing education clock hours.

12:00 p.m. - 12:25 p.m.: Demonstrate a greater understanding of psychosocial research that engages patients as research partners.
12:26 p.m. - 12:48 p.m.: Identify basic components of a research plan.
12:49 p.m. - 1:09 p.m.: Describe the role of research in improving patient care, and advocating for policy changes.
1:10 p.m. - 1:30 p.m.: Questions and Answers


ASSOCIATION OF SOCIAL WORK BOARDS (ASWB):  This organization, Association of Oncology Social Workers, ACE Approval #1351, is approved as a provider for social work continuing education by the Association of Social Work Boards (ASWB) through the Approved Continuing Education (ACE) Program. AOSW maintains responsibility for the program. ASWB Approval Period: 11/11/16 - 11/11/19.  Social workers should contact their regulatory board to determine course approval for continuing education credits. 

Association of Oncology Social Work, Inc., SW CPE is recognized by the New York State Education Department’s State Board for Social Work as an approved provider of continuing education for licensed social workers #0320.

GRIEVANCE POLICY: ASOW will comply with all legal and ethical responsibilities to be non-discriminatory in promotional activities, program content and in the treatment of program participants. The monitoring and assessment of compliance with these standards will be responsibility of the Education Director in consultation with the Education Chair and clinical director from committee. We do our best to anticipate problems and, when they do present themselves, will attempt to alleviate complaints as quickly as possible. When a complaint, either verbally or written, is received, the following guidelines are followed with respect to achieving resolution: (1) Complaints relative to a speaker or workshop leader, contents of instructional materials being presented, or an individual educational style being utilized, the individual voicing disapproval is requested to place his/her comments in writing. An AOSW representative will convey these comments to the speaker, assuring the confidentiality of the grieved individual. (2) If the complaint concerns a continuing education activity, its content, level of presentation, or facilities in which the event is being held, the representative in charge will attempt to resolve the matter as expeditiously as possible. If the offered resolution (resolutions offered may include, but not be limited to partial/full refund of registration fees paid; credit toward future event) not satisfactory to the individual filing the complaint, then further action may be taken as follows. (3) The individual is requested to place his/her complaint in writing to the attention of the Education Director, The Association of Oncology Social Work, 17W110 22nd St, Suite 800, Oakbrook Terrace, IL 60181. The complaint is then reviewed by the Education Director in consultation with the Clinical Director and Education Advisor. A written response will be issued within 30-days of receipt of the written complaint.

ADA ACCOMODATIONS: For questions about accessibility or to request accommodations please contact AOSW Education Department at 847-686-2233. Advance notice is necessary to arrange for some accessibility needs.