The Social Worker’s Role in Developing Equitable Community Programs

As social work professionals, we know firsthand how disparities in cancer diagnosis and treatment can affect health outcomes across communities.  This disparity is particularly evident in the rate of cancer clinical trial participation among underserved populations. Currently, less than 5% of clinical trial participants identify as Black or African American, despite making up 13% of the total U.S. population (Unger, et. al., 2016) . Research shows that systematic racism, provider bias, eligibility criteria, justified medical mistrust, and lack of patient knowledge, among others, are all factors that lead to this outcome (Hamel, et. al., 2016).  Research also tells us that not only are Black patients less likely to join a clinical trial, but they are also less likely to be offered one (Awidi & Al Hadidi, 2021) – meaning a growing proportion of Americans are not fully benefiting from advances in cancer care.  

AOSW’s Commitment to Diversity and Inclusion

Following a 2016 survey concluding that greater than 90% of membership identifies as white, the Association of Oncology Social Work (AOSW) committed itself to building a community that reflects all people affected by cancer. In the AOSW’s Diversity and Inclusion Statement, the AOSW recognizes that diversity among oncology social workers must keep pace with the increasing ethnic and racial diversity of our patient populations. The AOSW’s statement proclaims that regardless of age, race, national origin, gender, gender identity, sexual orientation, ability, religion and more, all members are valued and welcome. As a result, the AOSW set into motion long-term goals to advance diversity and inclusion at all levels of the organization.

Hero's Journey

What these mothers do is nothing less than heroic. They nurture life while knowing theirs is finite and in so doing show the miracle of life. It gives their actions an infusion of light and is a gift for those who witness it.  

Maribel and Nikki are from different worlds but are trudging the same path, through oncology treatment. They are both in their 30s, both with two young children. They differ by diagnosis and language, but both are dealing with Stage 4 cancer and a poor prognosis.  

Diversity, Equity and Inclusion Trainings & Information

Diversity, Equity and Inclusion (DEI) is paramount to assessing and meeting the needs of oncology patients and their families. Addressing differences in patient populations may improve clinical trial participation and general oncology support services. It may also decrease disparities in healthcare services. In answer to this need, oncology organizations are becoming more aware of DEI and how staff can incorporate specific skills into practice. We as oncology social workers have the responsibility of seeking out and perhaps even initiating discussion and education surrounding DEI. So where do we start? The following is a list of DEI trainings, courses and resources. This is not an all-encompassing list, rather we hope it provides a starting point in your search for growth in this area.

Creating an Intentional Structure to Support our Diversity, Equity and Inclusion Values

When asked to write an article for the Connections newsletter focused on Diversity, Equity and Inclusion, it was difficult to know where to start. The topic is enormous and felt overwhelming. However, after some reflection I was reminded of the excellent work done by the Patient Support Services (PSS) Diversity Committee at Moffitt Cancer Center—my place of employment. This committee was formed in 2020 out of the need to provide mutual support and increase dialogue regarding diversity within our department. ​​Over time, the committee has successfully planned activities to keep the celebration and incorporation of new knowledge experiences top of mind. Thus, creating an intentional structure to best highlight and promote our DEI values within Moffitt and the community.